Thursday, June 24, 2010 9:05 PM, CDT
Well, it's been a pretty rough past few weeks. Last week I fought fevers on and off. By the fourth night we decided we should probably get it looked at. We drew blood the next morning to check counts and look for infections. The counts came back pretty normal and they never found any growth on the culture. Once the fevers passed the tumor site started to become painful again. The inflammation is causing lots of discomfort, to the point of not being able to sleep again. Apparently my body started to get used to the Vicodin I was taking, and it was no longer as effective at controlling the pain. We hesitated to go back down to Mexico because chemo and radiation can cause swelling. We were very thankful that there were no infections as well.
I went into work on Monday a little bit, but other than that I spend my days trying to catch up on the sleep I lost at night. It is very disheartening. A typical night includes me going to bed at 9, rolling around til about 11. Getting up and either using a heat pad or icing the tumor. Maybe taking a hot bath. Four or 5 times a night crying out to God on the living room floor asking for some relief. Sounds like fun, huh?
Today we went into Dr. Schock to get some more blood drawn so that Rubio can test it and see what he thinks. Schock upped my meds to Vicodin along with time-released Morphine. I had my first tablet today and I am still in lots of pain. My left leg is tingling quite a bit from the inflammation and it makes it hard to sleep.
I try to play with my girls but even that is painful at times. They can't jump and climb on me like they used to. It is very difficult. Thankfully Katelyn has been wonderful at keeping my hopes up, but being in pain for that long is exhausting. We hope to hear good news from the blood culture in Mexico. We will probably get the results back on Monday. We will be getting another MRI in July to see what's going on.
Please pray for supernatural grace, wisdom, and discernment as we battle this ugly disease. I am tired of what it is taking from me. Pray for hope and that God would clearly speak to us and manifest His presence each step of the way. Katelyn had a dream a while back that she was writing my temperature down and fighting fevers. She remembers that it was a big spiritual battle that was going on. Pray for us. We need it. We thank you all for your faithfulness and may God richly bless you in this life and the life to come!